Parkinson's Disease Patient Stories
Stan Lahovec (61 years old), Parkinson's
My name is Stan Lahovec, I live on the Gold Coast, Queensland Australia. Originally I come from Slovenia, but I've been Australian citizen for more than 30 years.
By trade, I am an optical technician and have been working in the industry since March, 1984. My passion is oil painting, which I had to put on hold because of my disease.
About three years ago, I was diagnosed with Parkinson's disease. Nobody in my family has the disease, so it was a complete surprise when the doctor told me the news.
Most disturbing was the knowledge that there is no cure for this debilitating disease as I was told by the doctors.
In April this year, my step daughter Marina told me that Helensvale was hosting an informational evening about Parkinson's disease. My wife and I attended the presentation where we learned about adult stem cells and got the information about the clinic in Germany.
Soon thereafter, I contacted the Area Manager and the "ball started rolling".
On October 15th, I arrived in Frankfurt where the nurse from the clinic collected me at the airport.
On Monday October 18th, the bone marrow collection was performed.
Two days later, the transplantation of stem cells was done very professionally. I hardly felt anything. There was no pain and no bruises. Doctor gave me some pain killers, but I never needed any.
On Saturday, October 23rd, I boarded the plane on my way to see friends and family in Slovenia, where I spent two wonderful weeks on holidays recovering and where the healing process began.
November the 4th was the day to say goodbye to all my friends and family. I boarded the plane in Graz to Frankfurt and Marina, my stepdaughter, joined me in Frankfurt for the flight to Singapore. The journey was smooth and a little boring.
Finally, we arrived in Singapore where we had to disembark. We waited few hours to board the Sydney-bound plane (Qantas A380). All went ok. Marina and I were seated next to the window. At takeoff, the whole plane started to shake like an earthquake. I thought we`re to ascend. Everybody was relieved of the sudden fear.
Marina and I were talking, hoping the journey home will be fine and smooth when suddenly, just after 20 minutes of flying, there was a loud bang and huge flame shot out of the engine number one. At first I didn`t know what to make of it, then I froze and couldn`t move. My mind went into high gear. I saw pictures of my life flashing in front of me, then everything went blank. In the distance, I heard screaming and shouting and didn't understand what it was all about. Then I turned around and saw panic on other passengers faces around me. I sat still; frozen in my seat. I wasn't aware of how long that lasted, when suddenly, I heard loud clapping and cheering. Then I realized that we had landed safely back in Singapore.
To me the whole thing froze in time. I only snapped back to reality when I felt the wheels touch the ground. We were safely back from the brink. Next we got off the plane. After the fire brigade inspected the damage, we were sent to the hotel overnight, totally exhausted.
The next day, we boarded another plane and safely arrived in Sydney. We took another plane to Brisbane without much drama. We got home and two days later I couldn't move. It was like I was paralysed and all good work that was done by my stem cells and dedicated doctors was for nothing.
Only after a couple of weeks passed by, I started to get better and am still getting better by the day. At first, I was able to shave by myself. Next, I could eat without help. Now, I can drive my car and walk straight upright. I feel like a new man.
Today, I went to see my GP and he was speechless; seeing my transformation. He thinks I have improved about 80%. I even took my paintbrush and unfinished pictures and started to paint again; which is making me very happy.
I thank you all. Your team of doctors and staff deserve all the gratitude and praise in this world. You gave me back my life.
My name is Stan Lahovec, I live on the Gold Coast, Queensland Australia. Originally I come from Slovenia, but I've been Australian citizen for more than 30 years.
By trade, I am an optical technician and have been working in the industry since March, 1984. My passion is oil painting, which I had to put on hold because of my disease.
About three years ago, I was diagnosed with Parkinson's disease. Nobody in my family has the disease, so it was a complete surprise when the doctor told me the news.
Most disturbing was the knowledge that there is no cure for this debilitating disease as I was told by the doctors.
In April this year, my step daughter Marina told me that Helensvale was hosting an informational evening about Parkinson's disease. My wife and I attended the presentation where we learned about adult stem cells and got the information about the clinic in Germany.
Soon thereafter, I contacted the Area Manager and the "ball started rolling".
On October 15th, I arrived in Frankfurt where the nurse from the clinic collected me at the airport.
On Monday October 18th, the bone marrow collection was performed.
Two days later, the transplantation of stem cells was done very professionally. I hardly felt anything. There was no pain and no bruises. Doctor gave me some pain killers, but I never needed any.
On Saturday, October 23rd, I boarded the plane on my way to see friends and family in Slovenia, where I spent two wonderful weeks on holidays recovering and where the healing process began.
November the 4th was the day to say goodbye to all my friends and family. I boarded the plane in Graz to Frankfurt and Marina, my stepdaughter, joined me in Frankfurt for the flight to Singapore. The journey was smooth and a little boring.
Finally, we arrived in Singapore where we had to disembark. We waited few hours to board the Sydney-bound plane (Qantas A380). All went ok. Marina and I were seated next to the window. At takeoff, the whole plane started to shake like an earthquake. I thought we`re to ascend. Everybody was relieved of the sudden fear.
Marina and I were talking, hoping the journey home will be fine and smooth when suddenly, just after 20 minutes of flying, there was a loud bang and huge flame shot out of the engine number one. At first I didn`t know what to make of it, then I froze and couldn`t move. My mind went into high gear. I saw pictures of my life flashing in front of me, then everything went blank. In the distance, I heard screaming and shouting and didn't understand what it was all about. Then I turned around and saw panic on other passengers faces around me. I sat still; frozen in my seat. I wasn't aware of how long that lasted, when suddenly, I heard loud clapping and cheering. Then I realized that we had landed safely back in Singapore.
To me the whole thing froze in time. I only snapped back to reality when I felt the wheels touch the ground. We were safely back from the brink. Next we got off the plane. After the fire brigade inspected the damage, we were sent to the hotel overnight, totally exhausted.
The next day, we boarded another plane and safely arrived in Sydney. We took another plane to Brisbane without much drama. We got home and two days later I couldn't move. It was like I was paralysed and all good work that was done by my stem cells and dedicated doctors was for nothing.
Only after a couple of weeks passed by, I started to get better and am still getting better by the day. At first, I was able to shave by myself. Next, I could eat without help. Now, I can drive my car and walk straight upright. I feel like a new man.
Today, I went to see my GP and he was speechless; seeing my transformation. He thinks I have improved about 80%. I even took my paintbrush and unfinished pictures and started to paint again; which is making me very happy.
I thank you all. Your team of doctors and staff deserve all the gratitude and praise in this world. You gave me back my life.
Hortense Buise-Weidema (52 years old), Parkinson's
Country: Netherlands
Profession: Secondary School Teacher
Prior to stem cell therapy
In February 2002, the neurologist at the hospital in The Hague diagnosed me with Parkinson's. I was prescribed Sinemet and Comtan. I worked as a teacher at a secondary school teaching history and to make sure that I could keep working, I was referred to the LUMC for possible brain surgery. The doctors decided that was too dangerous and I was then prescribed Sifrol. The side-effects of the medications were variable but increasing. Because I wanted to teach a few more years and have fun with as few restrictions as possible, I searched for other treatment options and that's how I found stem cell therapy.
Symptoms
Cramping in the right groin and leg, hemi paralysis, tremors, rigidity, intermittent spasm
Side effects of medication (I swallowed 32 pills a day).
At night, I suffered from insomnia and so I slept in the afternoon. Problems with focusing my eyes. I was often sick and suffered from frequent headaches.
The Stem Cell Treatment
I had a consultation at the clinic and on that basis, I decided to proceed with stem cell treatment. The treatment was in January 2010. I was treated very well. Very clear explanations and guidance and the care was great! I was very well cared for. (Unfortunately, I have a lot of bad hospital experiences but this time, it was really okay). Over 7.5 million cells with 90.9% were implanted!
After Treatment
I was very skeptical about the results but from the beginning, the results were very positive. Soon, I noticed a change in my body: a "vibrant" (7up) feeling. I encountered no strange side-effects. However, I was a little emotional but I think that can never hurt. (Sometimes emotions bring relief ....) Now, my medications are more effective. I walk better, move better, and sleep better; dreaming about everything. My senses are more acute (e.g., feeling hot and cold). My more hair loss has stopped (my curls even come back!!). I suffer from far fewer headaches and both my short and long term memory have improved.
The effectiveness of my medications still varies. If my medications work, then they do it very well. When they do not work, then they really do nothing. If the medications are working, I can do anything. I can walk, iron, cycle, draw etc. During the good times, I try to do as much as possible. It is a difference of day and night comparing now to before. I go to physical therapy two times a week (one time sports). I bike on the home trainer and I walk as much as possible. In July, I was admitted for 10 days to reset the medication.
Country: Netherlands
Profession: Secondary School Teacher
Prior to stem cell therapy
In February 2002, the neurologist at the hospital in The Hague diagnosed me with Parkinson's. I was prescribed Sinemet and Comtan. I worked as a teacher at a secondary school teaching history and to make sure that I could keep working, I was referred to the LUMC for possible brain surgery. The doctors decided that was too dangerous and I was then prescribed Sifrol. The side-effects of the medications were variable but increasing. Because I wanted to teach a few more years and have fun with as few restrictions as possible, I searched for other treatment options and that's how I found stem cell therapy.
Symptoms
Cramping in the right groin and leg, hemi paralysis, tremors, rigidity, intermittent spasm
Side effects of medication (I swallowed 32 pills a day).
At night, I suffered from insomnia and so I slept in the afternoon. Problems with focusing my eyes. I was often sick and suffered from frequent headaches.
The Stem Cell Treatment
I had a consultation at the clinic and on that basis, I decided to proceed with stem cell treatment. The treatment was in January 2010. I was treated very well. Very clear explanations and guidance and the care was great! I was very well cared for. (Unfortunately, I have a lot of bad hospital experiences but this time, it was really okay). Over 7.5 million cells with 90.9% were implanted!
After Treatment
I was very skeptical about the results but from the beginning, the results were very positive. Soon, I noticed a change in my body: a "vibrant" (7up) feeling. I encountered no strange side-effects. However, I was a little emotional but I think that can never hurt. (Sometimes emotions bring relief ....) Now, my medications are more effective. I walk better, move better, and sleep better; dreaming about everything. My senses are more acute (e.g., feeling hot and cold). My more hair loss has stopped (my curls even come back!!). I suffer from far fewer headaches and both my short and long term memory have improved.
The effectiveness of my medications still varies. If my medications work, then they do it very well. When they do not work, then they really do nothing. If the medications are working, I can do anything. I can walk, iron, cycle, draw etc. During the good times, I try to do as much as possible. It is a difference of day and night comparing now to before. I go to physical therapy two times a week (one time sports). I bike on the home trainer and I walk as much as possible. In July, I was admitted for 10 days to reset the medication.
Bob Ransley (68 years old), Parkinson's
Home: Australia
I was diagnosed with Parkinson's Disease in 2003. My father had it, so the Neurologist said, and you have inherited it from him. Not really good news when you are a pianist and organist. My life went on hold and I stopped playing because of the shake in my hands.
In June 2009, a friend sent us a link and we submitted an enquiry for treatment for Parkinson's Disease. Within a few days, we received a phone call from the Area Manager for Australia and New Zealand. He talked to my wife, Diana and told her all about the clinic and how the treatment is administered and the expected results. We read all the case histories on the website and thought about making the trip to the clinic.
In February 2010, the Area Manager visited Australia and we were able to meet and talk with him. We spent quite some time discussing the benefits of stem cell treatment and he gave us the telephone number of another Parkinson's Disease sufferer called Phil, whose quality of life had greatly improved after having the treatment.
The Area Manager gave us confidence and we felt more secure about making the decision to go to Cologne. We just needed to talk with Phil and hear about his experience at the clinic. We spoke with Phil and were amazed at how much his quality of life had improved and very quickly booked into the clinic for June 2010.
From February until we left Australia in late May, the Area Manager kept in touch with us by email and telephone, keeping track of how I was coping with Parkinson's Disease.
June 2010 - We arrived at the clinic on 7 June and were greeted by Issam, who by now was a friend we were happy to see again. The atmosphere in the clinic is relaxed and comforting. You get to meet other people who come for treatment for various illnesses and chat to them.
The medical staff are caring and competent and the doctors completely dedicated to giving you back quality life. The extraction of the stem cells only takes a few minutes and is almost painless. The injection of the stem cells is equally simple. I experienced some back and leg pain for 2 or 3 days afterwards and some restlessness with sleeping. However, the pain responded to mild pain killers and within a few days, I was walking much better.
Now, one month has gone by and my walking is much improved (no shuffling) and my hands and body are free from shaking for several hours at a time.
My facial expression is brighter and I feel better all over. I am still taking my medication, but am spending more time each day playing the piano and organ as this is my life and what I missed most of all when I was diagnosed with Parkinson's. I am looking forward to further improvement over the next few months and am forever grateful to the clinic and all their staff for their wonderful support.
Home: Australia
I was diagnosed with Parkinson's Disease in 2003. My father had it, so the Neurologist said, and you have inherited it from him. Not really good news when you are a pianist and organist. My life went on hold and I stopped playing because of the shake in my hands.
In June 2009, a friend sent us a link and we submitted an enquiry for treatment for Parkinson's Disease. Within a few days, we received a phone call from the Area Manager for Australia and New Zealand. He talked to my wife, Diana and told her all about the clinic and how the treatment is administered and the expected results. We read all the case histories on the website and thought about making the trip to the clinic.
In February 2010, the Area Manager visited Australia and we were able to meet and talk with him. We spent quite some time discussing the benefits of stem cell treatment and he gave us the telephone number of another Parkinson's Disease sufferer called Phil, whose quality of life had greatly improved after having the treatment.
The Area Manager gave us confidence and we felt more secure about making the decision to go to Cologne. We just needed to talk with Phil and hear about his experience at the clinic. We spoke with Phil and were amazed at how much his quality of life had improved and very quickly booked into the clinic for June 2010.
From February until we left Australia in late May, the Area Manager kept in touch with us by email and telephone, keeping track of how I was coping with Parkinson's Disease.
June 2010 - We arrived at the clinic on 7 June and were greeted by Issam, who by now was a friend we were happy to see again. The atmosphere in the clinic is relaxed and comforting. You get to meet other people who come for treatment for various illnesses and chat to them.
The medical staff are caring and competent and the doctors completely dedicated to giving you back quality life. The extraction of the stem cells only takes a few minutes and is almost painless. The injection of the stem cells is equally simple. I experienced some back and leg pain for 2 or 3 days afterwards and some restlessness with sleeping. However, the pain responded to mild pain killers and within a few days, I was walking much better.
Now, one month has gone by and my walking is much improved (no shuffling) and my hands and body are free from shaking for several hours at a time.
My facial expression is brighter and I feel better all over. I am still taking my medication, but am spending more time each day playing the piano and organ as this is my life and what I missed most of all when I was diagnosed with Parkinson's. I am looking forward to further improvement over the next few months and am forever grateful to the clinic and all their staff for their wonderful support.
Herman E. (70 years old), Parkinson's
Home: United States
Diagnosis and Condition Before Stem Cell Therapy
Diagnosis of Parkinson's Disease in February of 2000. My symptoms at that time were a lack of facial expression (I didn't blink), right hand tremor, my arms didn't swing when I walked, I was taking smaller steps, my posture was bad, and my writing had become tiny and illegible. I sought naturopathic treatment the first year or so and did have some improvement in my symptoms. In October of 2001, I started on ropinirole along with the natural substances I was on. Ropinirole was gradually increased until I was on a total of 20 mg. a day in divided doses. I started having a lot of trouble with back pain, probably due to my slumping posture, and foot pain due to the way I was walking with all my weight on the balls of my feet. I was having trouble with drooling and in January of 2005 I was started on amantadine along with the ropinirole. I was relatively stable for about three years, my main problems being the back and foot problems.
Then in 2008, one foot became so bad with a hammer toe going over my big toe that I couldn't walk without being in great pain, so I had a surgery. After the surgery, I was immobilized in a special "boot" that had me walking very unnaturally. As a result of that, I started having terrible back pain and after an MRI, it was determined that I was suffering from four bulging discs. I had back surgery which relieved the pain but due to the stress of the pain, the surgery and the strong narcotics I was on for a prolonged period, my Parkinson's was aggravated and those symptoms became much worse. I began having halluncinations as a side effect of the ropinirole and amantadine.
My neurologist tried switching me to the main Parkinson's medication, Sinemet, but I am one of a minority of Parkinson's patients who cannot tolerate Sinemet. She then switched me from ropinirole to a lesser dose of pramipexole (Mirapex), decreased my amantadine by 50% and added rasagiline (Azilect). I was put on Seroquel for the halluncinations, which helped that problem. My Parkinson's symptoms did not improve on the new regimen and so my wife started looking for alternate treatments in January of 2009. She discovered the clinics website. We filled out the initial application and began the process of sending the requested medical records, and in June of 2009 we traveled for treatment.
At that time, physically I was very weak. I fell several times a day. My wife was afraid to let me out of the house to walk without her because of the falling. Once again, I wasn't blinking or having any facial expression. I was unable to interact with people socially because no one could understand my speech; it was so weak and slurred. I had a difficult time feeding myself. I ate sandwiches and other food that I could eat with my hands, or my wife fed me. I am a pretty optimistic person but I felt very depressed at my situation.
Condition After Stem Cell Therapy
Two months after the stem cell therapy, I had a checkup for a hole in my eardrum that had been there for several years and it was healed up completely! The doctor was quite suprised and my wife and I were estatic because we knew it was a sign that the stem cells were active and working!
As for the Parkinson's symptoms, I am much stronger. I still fall occasionally but nothing compared to before therapy. People tell me that I am talking much better. I am blinking and smiling and I have more facial expression. Very soon after treatment, my wife noticed that I was picking my feet up as I walked and not shuffling. She also says that my posture has improved. My ability to use utensils at mealtime is almost back to normal. I have never had a very bad tremor and that is basically unchanged, it involves my dominant hand and is triggered by stress, sometimes not present at all. Recently, I have been able to reduce the Mirapex from four a day to three a day. With these improvements, my attitude and outlook on life has improved significantly. Because of the positive improvements I have experienced, I am returning in March of 2010 for a second treatment.
Home: United States
Diagnosis and Condition Before Stem Cell Therapy
Diagnosis of Parkinson's Disease in February of 2000. My symptoms at that time were a lack of facial expression (I didn't blink), right hand tremor, my arms didn't swing when I walked, I was taking smaller steps, my posture was bad, and my writing had become tiny and illegible. I sought naturopathic treatment the first year or so and did have some improvement in my symptoms. In October of 2001, I started on ropinirole along with the natural substances I was on. Ropinirole was gradually increased until I was on a total of 20 mg. a day in divided doses. I started having a lot of trouble with back pain, probably due to my slumping posture, and foot pain due to the way I was walking with all my weight on the balls of my feet. I was having trouble with drooling and in January of 2005 I was started on amantadine along with the ropinirole. I was relatively stable for about three years, my main problems being the back and foot problems.
Then in 2008, one foot became so bad with a hammer toe going over my big toe that I couldn't walk without being in great pain, so I had a surgery. After the surgery, I was immobilized in a special "boot" that had me walking very unnaturally. As a result of that, I started having terrible back pain and after an MRI, it was determined that I was suffering from four bulging discs. I had back surgery which relieved the pain but due to the stress of the pain, the surgery and the strong narcotics I was on for a prolonged period, my Parkinson's was aggravated and those symptoms became much worse. I began having halluncinations as a side effect of the ropinirole and amantadine.
My neurologist tried switching me to the main Parkinson's medication, Sinemet, but I am one of a minority of Parkinson's patients who cannot tolerate Sinemet. She then switched me from ropinirole to a lesser dose of pramipexole (Mirapex), decreased my amantadine by 50% and added rasagiline (Azilect). I was put on Seroquel for the halluncinations, which helped that problem. My Parkinson's symptoms did not improve on the new regimen and so my wife started looking for alternate treatments in January of 2009. She discovered the clinics website. We filled out the initial application and began the process of sending the requested medical records, and in June of 2009 we traveled for treatment.
At that time, physically I was very weak. I fell several times a day. My wife was afraid to let me out of the house to walk without her because of the falling. Once again, I wasn't blinking or having any facial expression. I was unable to interact with people socially because no one could understand my speech; it was so weak and slurred. I had a difficult time feeding myself. I ate sandwiches and other food that I could eat with my hands, or my wife fed me. I am a pretty optimistic person but I felt very depressed at my situation.
Condition After Stem Cell Therapy
Two months after the stem cell therapy, I had a checkup for a hole in my eardrum that had been there for several years and it was healed up completely! The doctor was quite suprised and my wife and I were estatic because we knew it was a sign that the stem cells were active and working!
As for the Parkinson's symptoms, I am much stronger. I still fall occasionally but nothing compared to before therapy. People tell me that I am talking much better. I am blinking and smiling and I have more facial expression. Very soon after treatment, my wife noticed that I was picking my feet up as I walked and not shuffling. She also says that my posture has improved. My ability to use utensils at mealtime is almost back to normal. I have never had a very bad tremor and that is basically unchanged, it involves my dominant hand and is triggered by stress, sometimes not present at all. Recently, I have been able to reduce the Mirapex from four a day to three a day. With these improvements, my attitude and outlook on life has improved significantly. Because of the positive improvements I have experienced, I am returning in March of 2010 for a second treatment.
Jon Andersen (71 years old), Parkinson's
Home: Windsor, Connecticut
My condition before stem cell therapy
I was diagnosed with Parkinson's disease on July 20th, 2004. I was suffering from uncontrolled movements and back pain. I went to my doctor and asked him if there was anything he could do. He referred me to a neurologist who ordered an MRI. After reviewing my MRI, the neurologist told me that I had Parkinson's disease.
Before going to the clinic, I was shaking uncontrollably, even with the medications I was taking. I was on my computer one morning about 2 a.m. searching for new developments in Parkinson's treatment. After reading the clinic's web site, I was astounded with the clinic and its work.
After contacting the clinic through its web site and discussing the stem cell treatment with one of its US representatives, I decided to proceed with my medical evaluation. They asked me to submit my medical history, MRI report and neurological exam report. After a few days, one of the neurosurgeons approved me for treatment. I decided to go and was treated in July, 2009.
My Progress After Stem Cell Therapy
I returned to the USA on July 26th. Four days after my return home, my walking had already started to improve. I wasn't dragging right foot every time I took a step. My medication was now working. It had not worked for the past 60 days before I was treated. Now, I am walking like I was before I had Parkinson's and my shaking is more under control.
The first week of September, I noticed that my neck wasn't stiff anymore and I could drink fluids much easier. I am sleeping longer at night and have also gained 10 pounds. This is the first time in four years that I have been able to gain any weight. I am still shaking but I was informed that this might happen. Perhaps it is too soon since I had the procedure less than three months ago.
I'd like to add that exercise has helped my post-treatment progress tremendously. I recommend that anyone who is treated for Parkinson's get as much exercise as possible.
All my friends and other people I meet say that I am looking good. Their next question is why I could not get this procedure done in the United States? That's a good question!
Email Update - December 08, 2009
From: Jon Andresen
Sent: Tuesday, December 08, 2009 10:50 AM
Subject: Neurologist Check up.
Good morning I went to see my neurologist for a six month exam. She was surprised to see an improvement. This the one that wanted to know if the clinic had a license. Well, she is a believer now. I didn't tell her what has improved as of this date 12/07/09, at the end of my exam. She told me that I was much improved in the same area that I put in my blog, then I told her I went to the clinic for the procedure in July. I think she is a believer now.
Email Update - January 16th, 2010
From: Jon Andresen
Sent: Saturday, January 16, 2010 4:26 AM
Subject: It's working.
Good morning. This will be my six month update, I have no Parkinson's Pain in my joints. My neck is very good; no movement problems. Also my feet do not feel like they are ten pounds weights. I am still taking my pills for dyskinesia. They help to control my shaking. This probably will be the next thing to go. You know the old saying, first in, last out.
Email Update - March 11, 2010
From: Jon Andresen
Sent: Thursday, March 11, 2010 3:12 AM
Subject: Update.
Good morning,
It has been almost eight months and I have been pain free since December 2009. Speech is good, walking has improved. I am still driving for a car hire company. I drive each week between 500 and 1500 miles. I only work three days a week but when I was driving before treatment, my shaking made every car I drove feel like the wheels were out of balance. Now, that is not the case. I keep getting compliments about how much my face has changed. I used to have no facial expression; the "dead pan" look. Now, I am told how good I look. However, I am still having Dyskinesia but much more controlled. I used to stop on the road for a coffee and I would shake so bad that I would use a straw to drink it or I would carry it out to the and burn my thumb trying to stop the coffee from coming out the vent hole. That is 99 percent behind me now. Walking, talking and no pain were all well worth the Trip.
Thank you. I am getting calls from all over the USA. I am trying to help my brother and sisters with Parkinson's. I have heard from them and there is nothing but high price drugs out there for help. Keep exercising, eat nutritious meals, talk loudly, sing and dance. It helps to keep you moving.
Home: Windsor, Connecticut
My condition before stem cell therapy
I was diagnosed with Parkinson's disease on July 20th, 2004. I was suffering from uncontrolled movements and back pain. I went to my doctor and asked him if there was anything he could do. He referred me to a neurologist who ordered an MRI. After reviewing my MRI, the neurologist told me that I had Parkinson's disease.
Before going to the clinic, I was shaking uncontrollably, even with the medications I was taking. I was on my computer one morning about 2 a.m. searching for new developments in Parkinson's treatment. After reading the clinic's web site, I was astounded with the clinic and its work.
After contacting the clinic through its web site and discussing the stem cell treatment with one of its US representatives, I decided to proceed with my medical evaluation. They asked me to submit my medical history, MRI report and neurological exam report. After a few days, one of the neurosurgeons approved me for treatment. I decided to go and was treated in July, 2009.
My Progress After Stem Cell Therapy
I returned to the USA on July 26th. Four days after my return home, my walking had already started to improve. I wasn't dragging right foot every time I took a step. My medication was now working. It had not worked for the past 60 days before I was treated. Now, I am walking like I was before I had Parkinson's and my shaking is more under control.
The first week of September, I noticed that my neck wasn't stiff anymore and I could drink fluids much easier. I am sleeping longer at night and have also gained 10 pounds. This is the first time in four years that I have been able to gain any weight. I am still shaking but I was informed that this might happen. Perhaps it is too soon since I had the procedure less than three months ago.
I'd like to add that exercise has helped my post-treatment progress tremendously. I recommend that anyone who is treated for Parkinson's get as much exercise as possible.
All my friends and other people I meet say that I am looking good. Their next question is why I could not get this procedure done in the United States? That's a good question!
Email Update - December 08, 2009
From: Jon Andresen
Sent: Tuesday, December 08, 2009 10:50 AM
Subject: Neurologist Check up.
Good morning I went to see my neurologist for a six month exam. She was surprised to see an improvement. This the one that wanted to know if the clinic had a license. Well, she is a believer now. I didn't tell her what has improved as of this date 12/07/09, at the end of my exam. She told me that I was much improved in the same area that I put in my blog, then I told her I went to the clinic for the procedure in July. I think she is a believer now.
Email Update - January 16th, 2010
From: Jon Andresen
Sent: Saturday, January 16, 2010 4:26 AM
Subject: It's working.
Good morning. This will be my six month update, I have no Parkinson's Pain in my joints. My neck is very good; no movement problems. Also my feet do not feel like they are ten pounds weights. I am still taking my pills for dyskinesia. They help to control my shaking. This probably will be the next thing to go. You know the old saying, first in, last out.
Email Update - March 11, 2010
From: Jon Andresen
Sent: Thursday, March 11, 2010 3:12 AM
Subject: Update.
Good morning,
It has been almost eight months and I have been pain free since December 2009. Speech is good, walking has improved. I am still driving for a car hire company. I drive each week between 500 and 1500 miles. I only work three days a week but when I was driving before treatment, my shaking made every car I drove feel like the wheels were out of balance. Now, that is not the case. I keep getting compliments about how much my face has changed. I used to have no facial expression; the "dead pan" look. Now, I am told how good I look. However, I am still having Dyskinesia but much more controlled. I used to stop on the road for a coffee and I would shake so bad that I would use a straw to drink it or I would carry it out to the and burn my thumb trying to stop the coffee from coming out the vent hole. That is 99 percent behind me now. Walking, talking and no pain were all well worth the Trip.
Thank you. I am getting calls from all over the USA. I am trying to help my brother and sisters with Parkinson's. I have heard from them and there is nothing but high price drugs out there for help. Keep exercising, eat nutritious meals, talk loudly, sing and dance. It helps to keep you moving.
Aubra Philips (59 years old), Parkinson's
Marital status: Married, 2 children & 4 granddaughters
I started to notice tremors in my left hand and began to lose my gait and drag my left leg. Then I was diagnosed with Parkinson's disease at the age of 36. I had remarried one year earlier and was literarily caught in the middle of life. I was still a young man and often had to face weird reactions from people who were not aware of my illness. Some thought my shaking came from alcohol deprivation and asked me if I needed another beer and once the police arrested me in my car; assuming I was taking drugs. It took them a few hours to check my story and all of my medications.
Although my Parkinson's progressed, I remained active and continued to work for another 15 years. I was working with heavy equipment (a bulldozer) and eventually, work became too unsafe. I was not able to turn my rigid head and look behind me. I retired in 2002.
I underwent a pallidotomy treatment in 2000, which stopped the tremor in my right hand, but I lost my coordination. I used to fall a lot prior to the pallidotomy, because I was tripping a lot. This also improved.
Despite this crushing diagnosis, I remained a positive attitude all the time. My wife and I had decided to travel as much as possible while I was still fit to do so and live our lives in the present, instead of waiting for retirement. Over the years, we've managed to see a good chunk of the world.
Sometime in 2008 I started to get depressed and my right hand also started to have tremors. I got tired of taking so much medication. In September 2008, we started to research the Internet about adult stem cell therapy. On December 10, 2008 I underwent my first treatment.
It was a scary experience to fly abroad to undergo treatment, but it did not worry me much since I saw no other option. I was unhappy and had to do something.
Progress After Stem Cell Therapy
When walking to dinner one night, my wife noticed that I was not dragging my feet. I always shuffled before but I did not notice it as much as she did. Very soon after that, I was walking faster than my wife and looking younger. I had a smile on my face, had more expression, became more talkative, and regained my confidence. Prior to treatment, I used to freeze; standing in the corner of a room unable to move. After the stem cell treatment I would no longer freeze. My handwriting has improved. It used to be really small and narrow.
I felt much better, my depression improved and I just wanted to keep going; like being freed after having been tied down for a long time. I got on the bowling league again and had to teach myself how to bowl all over again. Now, I am bowling with guys who average age 92 and still beat me, but I am improving! I volunteered for forest service and pick up trash to keep the forest clean now. I am taking walks with my father-in-law, go boat fishing and hunting.
However some months ago, I noticed that my depression was returning. The physical improvements remained stable. Therefore, I have returned for a second stem cell treatment to treat my depression again.
I have learned in life that people tend to take a lot of things for granted. Parkinson's has taken half of my life away from me, but I still treasure it. To other patients who consider stem cell therapy for Parkinson's I would say, "Do not expect a big change. If it is just little things that improve then that is it. It is a step in the right direction."
Marital status: Married, 2 children & 4 granddaughters
I started to notice tremors in my left hand and began to lose my gait and drag my left leg. Then I was diagnosed with Parkinson's disease at the age of 36. I had remarried one year earlier and was literarily caught in the middle of life. I was still a young man and often had to face weird reactions from people who were not aware of my illness. Some thought my shaking came from alcohol deprivation and asked me if I needed another beer and once the police arrested me in my car; assuming I was taking drugs. It took them a few hours to check my story and all of my medications.
Although my Parkinson's progressed, I remained active and continued to work for another 15 years. I was working with heavy equipment (a bulldozer) and eventually, work became too unsafe. I was not able to turn my rigid head and look behind me. I retired in 2002.
I underwent a pallidotomy treatment in 2000, which stopped the tremor in my right hand, but I lost my coordination. I used to fall a lot prior to the pallidotomy, because I was tripping a lot. This also improved.
Despite this crushing diagnosis, I remained a positive attitude all the time. My wife and I had decided to travel as much as possible while I was still fit to do so and live our lives in the present, instead of waiting for retirement. Over the years, we've managed to see a good chunk of the world.
Sometime in 2008 I started to get depressed and my right hand also started to have tremors. I got tired of taking so much medication. In September 2008, we started to research the Internet about adult stem cell therapy. On December 10, 2008 I underwent my first treatment.
It was a scary experience to fly abroad to undergo treatment, but it did not worry me much since I saw no other option. I was unhappy and had to do something.
Progress After Stem Cell Therapy
When walking to dinner one night, my wife noticed that I was not dragging my feet. I always shuffled before but I did not notice it as much as she did. Very soon after that, I was walking faster than my wife and looking younger. I had a smile on my face, had more expression, became more talkative, and regained my confidence. Prior to treatment, I used to freeze; standing in the corner of a room unable to move. After the stem cell treatment I would no longer freeze. My handwriting has improved. It used to be really small and narrow.
I felt much better, my depression improved and I just wanted to keep going; like being freed after having been tied down for a long time. I got on the bowling league again and had to teach myself how to bowl all over again. Now, I am bowling with guys who average age 92 and still beat me, but I am improving! I volunteered for forest service and pick up trash to keep the forest clean now. I am taking walks with my father-in-law, go boat fishing and hunting.
However some months ago, I noticed that my depression was returning. The physical improvements remained stable. Therefore, I have returned for a second stem cell treatment to treat my depression again.
I have learned in life that people tend to take a lot of things for granted. Parkinson's has taken half of my life away from me, but I still treasure it. To other patients who consider stem cell therapy for Parkinson's I would say, "Do not expect a big change. If it is just little things that improve then that is it. It is a step in the right direction."
Johannes Wolf (72 years old), Parkinson's
Job: Engineer
Marital status: Married, one son & one daughter
How it Started
I was on a skiing holiday with my wife in 2003. The ski instructor showed us a stem turn and suddenly I found that my ski wouldn't do what I wanted it to anymore. I went to my GP first for a check-up and she sent me to a neurologist. He diagnosed Parkinson's and this was subsequently confirmed in a university clinic by an MRI scan. It was also established at this point that I had been suffering from Parkinson's since 1997. I had always had leaden legs in previous years and neighbours had even noticed that I was beginning to move slower.
The Consequences
Initially, I was prescribed the usual drugs used to counter the illness, such as dopamine. I also went to various professors at my hospital in order to receive state-of-the-art treatment. I asked about adult stem cell treatment there but I was always told that I'd have to wait another ten years for it. In 2005, I was prescribed a new drug which elicited more side-effects than positive ones in me. For example, when I'd get out of the car, I would feel so dizzy that I'd have to hang on to the car for a moment. My health continued to deteriorate. In order to do something to counter the Parkinson's, I lost ten kilos in weight and played an hour of sport each day. However, my extensive forest walks, which used to be four kilometres in length, had to be kept to just 500 metres because of exhaustion. My legs became heavier, I couldn't climb stairs anymore. I was finding it increasingly difficult to write anything and eventually I couldn't write at all.
I looked for alternative treatments. I would spend nights on the Internet researching the subject of stem cell research and genetics.
Stem Cell Treatment - 2007
In July 2007, I had bone marrow removed from my hip. This was processed in a laboratory and re-injected a few days later. The process wasn't laborious at all and I didn't have any side-effects such as headaches or nausea. After resting for four hours after the implant, my wife was able to take me home again.
The Result
I could feel a tingling in my head in the first eight days after the treatment, as if there was a small revolution taking place. The feeling of having lead in my legs continuously lessened. I found it increasingly easier to brush my teeth and could close the small buttons on my shirt again. I gradually came off the drugs two weeks after the treatment and brought them back to my doctor. Four weeks later, I then went to the forest and simply walked and walked. To date, I don't have any pain anymore and I am completely drug free. It's like a miracle to me!
Advice
Adult stem cell treatment is still considered a treatment attempt in Germany and is treated with a lot of scepticism by doctors. However, you shouldn't be put off by this. I am convinced that the treatment has helped me!
Job: Engineer
Marital status: Married, one son & one daughter
How it Started
I was on a skiing holiday with my wife in 2003. The ski instructor showed us a stem turn and suddenly I found that my ski wouldn't do what I wanted it to anymore. I went to my GP first for a check-up and she sent me to a neurologist. He diagnosed Parkinson's and this was subsequently confirmed in a university clinic by an MRI scan. It was also established at this point that I had been suffering from Parkinson's since 1997. I had always had leaden legs in previous years and neighbours had even noticed that I was beginning to move slower.
The Consequences
Initially, I was prescribed the usual drugs used to counter the illness, such as dopamine. I also went to various professors at my hospital in order to receive state-of-the-art treatment. I asked about adult stem cell treatment there but I was always told that I'd have to wait another ten years for it. In 2005, I was prescribed a new drug which elicited more side-effects than positive ones in me. For example, when I'd get out of the car, I would feel so dizzy that I'd have to hang on to the car for a moment. My health continued to deteriorate. In order to do something to counter the Parkinson's, I lost ten kilos in weight and played an hour of sport each day. However, my extensive forest walks, which used to be four kilometres in length, had to be kept to just 500 metres because of exhaustion. My legs became heavier, I couldn't climb stairs anymore. I was finding it increasingly difficult to write anything and eventually I couldn't write at all.
I looked for alternative treatments. I would spend nights on the Internet researching the subject of stem cell research and genetics.
Stem Cell Treatment - 2007
In July 2007, I had bone marrow removed from my hip. This was processed in a laboratory and re-injected a few days later. The process wasn't laborious at all and I didn't have any side-effects such as headaches or nausea. After resting for four hours after the implant, my wife was able to take me home again.
The Result
I could feel a tingling in my head in the first eight days after the treatment, as if there was a small revolution taking place. The feeling of having lead in my legs continuously lessened. I found it increasingly easier to brush my teeth and could close the small buttons on my shirt again. I gradually came off the drugs two weeks after the treatment and brought them back to my doctor. Four weeks later, I then went to the forest and simply walked and walked. To date, I don't have any pain anymore and I am completely drug free. It's like a miracle to me!
Advice
Adult stem cell treatment is still considered a treatment attempt in Germany and is treated with a lot of scepticism by doctors. However, you shouldn't be put off by this. I am convinced that the treatment has helped me!
Ted Ebertsch (66 years old), Parkinson's
Diagnosis
I retired from scientific work in 2002 and was teaching mathematics as a substitute teacher when I started to notice slight leg tremors, particularly in my left leg. They seemed to be caused by stress, but also appeared when I was just sitting in a chair; my leg would do an involuntarily 'dance.' In early 2005, shortly after I first noticed these tremors, I was diagnosed with Parkinson's disease.
Over the next 3 years I was treated with the usual dopamine-agonists that were increased gradually as my disease progressed.
Symptoms
My main symptoms were lack of energy - I was getting tired very easy and could sleep almost all the time - some balance & walking problems, altered gait, my muscles were stiff and tight, and my facial expressions were impaired. I rarely blinked. I had been physically active prior to getting ill. I ran 2-3 times a week, lifted weights, played basketball and golfed. I gave up all sports except for golf, which became more work than fun, due to my walking problems.
During my 30-year professional career, I worked in a scientific laboratory and was quite informed on the subject of stem cell research and therapies prior to being diagnosed with Parkinson's. Later on, I began to research more on the subject and found out about your center; a clinic that was working exclusively with autologous adult stem cells and not with embryonic stem cells. That was an important issue to me, not only because of moral questions, but more so for the sake of the safety.
First Treatment September 2008 - Results
I was treated by means of lumbar puncture in September of 2008; pretty much a year ago.
On our flight home a few days after the treatment, my wife noticed that I was shining while we were having a conversation. Within the first 3-4 weeks after treatment I noticed dramatic changes, especially in my energy levels. I was able to walk on the golf course without being exhausted. It was a lot more fun! My gait improved; I was walking fairly normal. My neurologist saw me during this time and confirmed that I looked like I was doing very well, despite his skepticism regarding stem cell therapy.
During the last few months I noticed that I get a little tired again and therefore decided to come back for a repeat stem cell treatment. My general practitioner, who is a supporter of stem cell therapies and frequently travels to stem cell conferences, told me to go for it. He had seen my improved physical appearance after the first therapy and was amazed.
I know that each person and each patient will have a different experience with stem cell therapy. I did not undergo this therapy expecting a cure. To me it has been a very positive treatment and really improved the quality of my life.
Diagnosis
I retired from scientific work in 2002 and was teaching mathematics as a substitute teacher when I started to notice slight leg tremors, particularly in my left leg. They seemed to be caused by stress, but also appeared when I was just sitting in a chair; my leg would do an involuntarily 'dance.' In early 2005, shortly after I first noticed these tremors, I was diagnosed with Parkinson's disease.
Over the next 3 years I was treated with the usual dopamine-agonists that were increased gradually as my disease progressed.
Symptoms
My main symptoms were lack of energy - I was getting tired very easy and could sleep almost all the time - some balance & walking problems, altered gait, my muscles were stiff and tight, and my facial expressions were impaired. I rarely blinked. I had been physically active prior to getting ill. I ran 2-3 times a week, lifted weights, played basketball and golfed. I gave up all sports except for golf, which became more work than fun, due to my walking problems.
During my 30-year professional career, I worked in a scientific laboratory and was quite informed on the subject of stem cell research and therapies prior to being diagnosed with Parkinson's. Later on, I began to research more on the subject and found out about your center; a clinic that was working exclusively with autologous adult stem cells and not with embryonic stem cells. That was an important issue to me, not only because of moral questions, but more so for the sake of the safety.
First Treatment September 2008 - Results
I was treated by means of lumbar puncture in September of 2008; pretty much a year ago.
On our flight home a few days after the treatment, my wife noticed that I was shining while we were having a conversation. Within the first 3-4 weeks after treatment I noticed dramatic changes, especially in my energy levels. I was able to walk on the golf course without being exhausted. It was a lot more fun! My gait improved; I was walking fairly normal. My neurologist saw me during this time and confirmed that I looked like I was doing very well, despite his skepticism regarding stem cell therapy.
During the last few months I noticed that I get a little tired again and therefore decided to come back for a repeat stem cell treatment. My general practitioner, who is a supporter of stem cell therapies and frequently travels to stem cell conferences, told me to go for it. He had seen my improved physical appearance after the first therapy and was amazed.
I know that each person and each patient will have a different experience with stem cell therapy. I did not undergo this therapy expecting a cure. To me it has been a very positive treatment and really improved the quality of my life.
Gilda Bertran (54 years old), Parkinson's
Home Country: Mexico
Interview: 5 October 2009
Before Stem Cell Therapy
I was a very active athlete and frequently participated in marathons and triathlons before I developed a back condition and had to undergo 3 spinal surgeries. After the last surgery my overall constitution had deteriorated. I began to walk with a stiff hand and dragged my foot. My right hand and leg were shaking. I blamed it on the surgery and thought the symptoms would wear off, but they did not. An MRI of my brain and back was performed. Based on this MRI, I was diagnosed with Parkinson's disease in November of 2008. In December of 2008, I started seeing a neurologist who confirmed the diagnosis and prescribed Parkinson's medication to me.
The medication helped, I had fewer tremors and my walking improved a little. I was no longer walking bent forward.
First Stem Cell Therapy
My husband introduced me to the possibility of undergoing stem cell therapy and I had my first stem cell treatment in February of 2009. My own adult stem cells were re-implanted by means of lumbar puncture.
My Results
My face appeared blank and sad before my stem cell treatment. The initial improvement was changing facial expressions. This improvement came quickly; almost immediately. I felt better altogether. Within 2-3 months my tremor disappeared by 80 - 90%. Today my hand only shakes a little when I am nervous.
I used to run 10 km in an hour every day prior to falling ill and prior to my surgeries. Today I still remain active and push myself, walking 6 km every day and swimming frequently.
After my first stem cell therapy I started to walk straighter and some of my old energy has returned. However, my walking is not very good at the moment. My right leg still drags. This is why I decided to undergo a second stem cell treatment in October of 2009.
Home Country: Mexico
Interview: 5 October 2009
Before Stem Cell Therapy
I was a very active athlete and frequently participated in marathons and triathlons before I developed a back condition and had to undergo 3 spinal surgeries. After the last surgery my overall constitution had deteriorated. I began to walk with a stiff hand and dragged my foot. My right hand and leg were shaking. I blamed it on the surgery and thought the symptoms would wear off, but they did not. An MRI of my brain and back was performed. Based on this MRI, I was diagnosed with Parkinson's disease in November of 2008. In December of 2008, I started seeing a neurologist who confirmed the diagnosis and prescribed Parkinson's medication to me.
The medication helped, I had fewer tremors and my walking improved a little. I was no longer walking bent forward.
First Stem Cell Therapy
My husband introduced me to the possibility of undergoing stem cell therapy and I had my first stem cell treatment in February of 2009. My own adult stem cells were re-implanted by means of lumbar puncture.
My Results
My face appeared blank and sad before my stem cell treatment. The initial improvement was changing facial expressions. This improvement came quickly; almost immediately. I felt better altogether. Within 2-3 months my tremor disappeared by 80 - 90%. Today my hand only shakes a little when I am nervous.
I used to run 10 km in an hour every day prior to falling ill and prior to my surgeries. Today I still remain active and push myself, walking 6 km every day and swimming frequently.
After my first stem cell therapy I started to walk straighter and some of my old energy has returned. However, my walking is not very good at the moment. My right leg still drags. This is why I decided to undergo a second stem cell treatment in October of 2009.
Margrethe Stege (84 years old), Parkinson's.
Received I.V. mannitol stem cell treatment in October 2010
Letter from Margrethe
I am very happy with the results and improvements after my stem cell treatment.
I live in Silkeborg, Denmark and have been practicing as a qualified physiotherapist for many years.
I was first diagnosed in 2007, but I knew long before that something was not right.
As most other Parkinson's patients I began to feel that walking became difficult, I felt restless, had gastrointestinal problems, had tremor and had problems with the balance - for instance I could not walk backwards.
After stem cell treatment I went to see my neurologist who was very surprised to learn how I had improved.
I have improvements in all of the above described symptoms. Further he advised me to take some herbal medication which makes me sleep much better - I do not know if the better sleep is due to the stem cells or the herbal medication. But the good thing is that you do not get addicted to the herbal medication as with normal sleeping pills.
Received I.V. mannitol stem cell treatment in October 2010
Letter from Margrethe
I am very happy with the results and improvements after my stem cell treatment.
I live in Silkeborg, Denmark and have been practicing as a qualified physiotherapist for many years.
I was first diagnosed in 2007, but I knew long before that something was not right.
As most other Parkinson's patients I began to feel that walking became difficult, I felt restless, had gastrointestinal problems, had tremor and had problems with the balance - for instance I could not walk backwards.
After stem cell treatment I went to see my neurologist who was very surprised to learn how I had improved.
I have improvements in all of the above described symptoms. Further he advised me to take some herbal medication which makes me sleep much better - I do not know if the better sleep is due to the stem cells or the herbal medication. But the good thing is that you do not get addicted to the herbal medication as with normal sleeping pills.
Lawrence Lindsley (68 years old), Parkinson's
Background:
I am a 68 year old retired police officer and retired USAR officer. I am married and we have three children and six grandchildren. I have led a fairly active life, as both professions required that I keep in fairly good condition. I still do moderate workouts and continue to play golf when possible. I was diagnosed with PD in 2002.
Condition Before Stem Cell Treatment:
The progress of the disease has been fairly slow, making my case somewhat atypical. I do not suffer from the tremors that afflict so many with the disease. My gait is somewhat stiff and I tend to lean to my left when tired, holding my left wrist at a slightly odd angle. My primary symptoms are general weakness and fatigue.
When we arrived at the center in May of 2009, I found walking very tiring. I could walk for about a half hour and then I had to return to our hotel to rest. For a few months prior to this I would consistently nod asleep in public. I quickly became exhausted when performing any strenuous activity. When I would exercise in the morning, by the afternoon I had to take a long nap to recover. In December of 2008 we took two of our grandchildren to Rockefeller Center to see the tree. By the end of ;the day I was hobbling along, barely able to keep up. My face had the "deadpan" expression connected with the disease.
Condition After Stem Cell Therapy:
The day following treatment, my wife and I spent most the day walking. Though I took frequent rests, I didn't have to return to our hotel room to lay down. Since returning home, two friends and my personal physician, have told me that at I looked much better, than I looked last year. Now, when I workout, I can go through the day without stopping. We again went down to Rockefeller Center this Christmas, and I had no trouble keeping up. Now, I rarely nod out in public.
To sum up, I would say that the changes I have experienced are very subtle. Being in the "eye of the storm" sort of speak, I find it hard to judge changes in my condition. My ability to walk all day immediately following treatment could be explained by my adjustment to jet-lag. I attribute the "looking better" comments to improved facial expression.
Do I still have PD? Yes
Do I still tire quickly with strenuous activity? Yes
Is my disease still progressing? Probably
Has my stamina improved? Yes
Was the trip to the clinic worthwhile? The jury is still out. But if pressed on the matter, my answer would have to be, yes.
Background:
I am a 68 year old retired police officer and retired USAR officer. I am married and we have three children and six grandchildren. I have led a fairly active life, as both professions required that I keep in fairly good condition. I still do moderate workouts and continue to play golf when possible. I was diagnosed with PD in 2002.
Condition Before Stem Cell Treatment:
The progress of the disease has been fairly slow, making my case somewhat atypical. I do not suffer from the tremors that afflict so many with the disease. My gait is somewhat stiff and I tend to lean to my left when tired, holding my left wrist at a slightly odd angle. My primary symptoms are general weakness and fatigue.
When we arrived at the center in May of 2009, I found walking very tiring. I could walk for about a half hour and then I had to return to our hotel to rest. For a few months prior to this I would consistently nod asleep in public. I quickly became exhausted when performing any strenuous activity. When I would exercise in the morning, by the afternoon I had to take a long nap to recover. In December of 2008 we took two of our grandchildren to Rockefeller Center to see the tree. By the end of ;the day I was hobbling along, barely able to keep up. My face had the "deadpan" expression connected with the disease.
Condition After Stem Cell Therapy:
The day following treatment, my wife and I spent most the day walking. Though I took frequent rests, I didn't have to return to our hotel room to lay down. Since returning home, two friends and my personal physician, have told me that at I looked much better, than I looked last year. Now, when I workout, I can go through the day without stopping. We again went down to Rockefeller Center this Christmas, and I had no trouble keeping up. Now, I rarely nod out in public.
To sum up, I would say that the changes I have experienced are very subtle. Being in the "eye of the storm" sort of speak, I find it hard to judge changes in my condition. My ability to walk all day immediately following treatment could be explained by my adjustment to jet-lag. I attribute the "looking better" comments to improved facial expression.
Do I still have PD? Yes
Do I still tire quickly with strenuous activity? Yes
Is my disease still progressing? Probably
Has my stamina improved? Yes
Was the trip to the clinic worthwhile? The jury is still out. But if pressed on the matter, my answer would have to be, yes.